The Bonk Chronicles: Endo Consult Finally Scheduled

I thought things were on the right track after my hook up with the highly recommended Endocrinologist’s office, then I got a message from my PCF this AM (5/18):

Dear Dean,
I’ve been doing some more investigating into Endocrinology options – with PPIC insurance you also have the option of seeing one of the Meriter Medical Group Endocrinologists, Dr. Deborah Wubben or Dr. Simone Glinberg. They would be able to see you in the office for a consultation before deciding weather or not to proceed with a hospital admission for a 72-hour fast.

If this option sounds better than UW Endocrinology then I will proceed with the referral process.

I had checked in with both UW-Endo and my PCF last week and was told they were talking to each other to get something scheduled. Not excited about the glacial pace of progress with getting an Endo consult. I responded to my PCF thusly:

Thank you for the follow up. I am slightly confused about this situation. From what I understand in my limited discussions with them, UW Endocrinology wants the 72-hour fast with blood work done before they’ll do a consult. I mentioned trying to do blood work during or immediately after exercise to better replicate the situation. They were not sure if this could be accommodated. Now it sounds like you’re recommending I go another route with Meriter Medical Group.

I understand that additional blood work needs to be draw when I’m exhibiting symptoms. My concern is that similar to the previous (inconclusive) tests using a 12-hour fast, the 72-hour fast may not accurately represent the conditions under which I experience hypoglycemia. If that test incurs a hospital stay for the entire 72 hours, I question whether or not it is worth the investment in time and medical resources.

On 5/6 about 5:30 PM, I had a friend assist me in checking my glucose every 5 minutes while I was running on a treadmill. Pre-run I registered at 85. Within about 37 minutes at an easy pace it had plummeted to 22, falling from 41 to 22 in the last 5 minutes alone. This episode was after a day of never going more the 90 minutes without food and having a substantial snack 60 minutes before the run. Clearly something is wrong and I know the symptoms can be replicated.

I have an Ironman event scheduled for 6/27 and hope to do a good deal of training yet before then. At this point I’d advocate whatever path is going to get me useful answers in the shortest amount of time.

thanks!
~dean

He then responded:

Hi Dean,
I’ll go ahead and try to make arrangements for Endocrinology consultation with Dr. Wubben or Dr. Glinberg with the Meriter Medical Group. I think that would be the best route. It also looks like you have an MRI scheduled on 5/26 that would still be worthwhile keeping.

PCP’s Office called me this morning (5/19) and let me know I have a consult appointment with Dr. Wubben on 6/2. So from what I understand, my preferred Endo Clinic told my PCP that they wanted better test results (72-hour fast) before they’d do a consult. Because they hadn’t seen me yet, my PCP needed to order the test, not them. I can see their point: they were trying to be expedient (because they understand the urgency of my IM time line) and wanted to start from a more accurate place – both which I appreciate. For reasons unclear to me, my PCP either likes this other clinic better and/or doesn’t want to order the tests prior to a consult. Further, it seems there may be some HMO politics at play here as well. The two Endo clinics would send me to different hospitals. Unfortunately, the bottom line is that I get two more weeks to wait with no answers…

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Daily Positives – 5/18/2010

  • Great swim over lunch. Feeling better each time I get in the pool.
  • Fun happy hour with coworkers this evening at Bridges
  • Beautiful sunset walk with Sitka
  • I am once again reminded of how incredibly fortunate I am to have some amazing friends
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On Openness and Perspective

Shortly after our divorce announcement went out, M & I got a unique and encouraging response from a mutual friend of ours, Pat:

What an exciting time for both of you! Change can replenish the soul in so many wonderful ways. You will always be apart of each other on so many levels that your union will always exist within each of you. While your paths are taking separate roads now, you both will still be traveling and sharing your stories with old and new friends. Our society, even ourselves, may discourage this uncoupling for the betterment of each, but personally, I’m all for it. Be true to yourselves and others and the rest will work itself out. I do not consider your separation has a weakening, rather two good people having a chance to reach out into our community in two new directions. I feel for the pain that you went through and the pain that is yet to come during this division, but I also am joyous in your new awakenings. Let the little things fall to the side, see the good, forgive the bad in the other and yourself, open the heart, shake the wings, and soar to new adventures.

While I liked the message from an intellectual standpoint, I wasn’t exactly in a receptive place for it emotionally. I followed up the next day:

Thanks. I appreciate your fresh perspective of hopefulness and exuberance. It almost makes me want to take the gun out of my mouth.

Just kidding about the gun. You’re right in many respects and I do sincerely appreciate the positive perspective. I hope our paths cross again. You are truly one of a kind.

I knew I wasn’t ready to process all that in the manner it deserved. Part of me secretly hoped that would be the end of the exchange. It was not. He shared with me a story of his friend Steve whom I’ve never met. I include the story not because the details parallel my situation, but because it illustrates a person making a conscious choice about how do deal with a life-changing event. Pat responds:

Your comment about the gun out of your mouth reminds me of my friend and his divorce from his wife. The gist is that his wife started sleeping with the other youth group leader, the church supported this “new couple” because his parents were huge contributors to the church.  My friend was basically excommunicated from the church though he was the one that had been wronged.
He did get in his car and planned on driving until he couldn’t any longer, get a hotel and end his life.  He made a call to the suicide support line and that call save his life.  He went to get counseling and was tasked by counselor to go to Second City and start in one of their groups.  No, he didn’t become one of America’s greatest stand up comedians.  But he took his pain and created something beautiful from it.  His comedy revealed his pain to the world and made us care for him and ourselves.  After his trials and tribulations and his healing, I became friends with him.  He is one of my favorite people on the planet.  He healed.  His scar still shows.  His past pain can still be detected.  But not because he is still in pain, but because he is so quick to see pain in others and he helps them to heal.  I know he would not have chosen the path he has taken in his life, but when he hit the bumps, he did not fall, he got air.
I do not envy you because you will have an easy time of this.  I envy those who will meet you in your future.  In your time to heal. When the pain comes in waves, get out the longboard…

I must have read that email thirty times over the next few days. So incredibly profound and so inconceivably unattainable that it made me angry. Angry! I wanted to believe that he made it up, merely fodder more for some bullshit Hollywood movie than for a real person to have experienced. But that’s not Pat’s way; that much I could believe. So of course I saved it, thinking I’d come back to it at some point in the distant future when I could more objectively reflect and better process its message. I didn’t talk to anyone about his email and was surprised to be reminded of it so soon, barely 3 weeks later.

More recently, after spending some quality time with a close friend Kathleen, I recieved a most validating email:

Your vulnerability with me, and with others, is a gift to us. Incredibly liberating, for me anyway, to have someone model grief, and acceptance of that emotion, and the effect that such candor has on stepping-down the intensity of the emotion.

Its like the ghosts of Christmas Past, Present, and Yet to Come. Three people, one of which I’ve never even met, all of which I am grateful for, have somehow converged for me during a time of immense need and uncertainty to usher me into a profound positive transformation. Wow.

It is a great paradox for me: creating exponentially more integral connections by learning to let go and feeling less vulnerable by opening yourself up. Somehow things are starting to make a little more sense. I’m trying to work with the things that hurt and scare me instead of against them. It’s hard work either way, but in working with the scary stuff, I feel better about the effort. And the results.

The blind don’t fear the dark, they embrace it.

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Daily Positives – 5/17/2010

  • Reached a major termination milestone in an initiative I’ve been involved with at work for the last year. Kudos from my boss and one of the C-level folks overseeing the initiative.
  • Productive and somewhat unexpected discussion with a high level manager today about my desired career path at work
  • Hard swim after work this afternoon. Felt pretty good the whole time.
  • Michele and I had a cordial and productive discussion about dividing possessions and next steps in the divorce process
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Daily Positives – 5/16/2010

  • Mocha!
  • Fixed Kathleen’s screen door and had a great chat over some coffee
  • M, the physical therapist, taped my achilles enabling me to have a kick ass ride this afternoon in very windy conditions. Longest ride since the achilles problems started – 66 miles.
  • Movie & pizza night with Jen. Sherlock Holmes and Rosati’s. Even re-strung her “niece’s” Hannah Montana guitar.
  • Received an encouraging and insightful note from a close friend regarding my openness, comfort with vulnerability, and modeling of my grief. Amazingly validating for me.
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Daily Positives – 5/15/2010

  • Out on the bike. Great weather.
  • Iced mocha
  • Good bit of yard work knocked out. Sitka & I very much enjoyed being outside.
  • Got to hang and catch up with Norm all night. Awesome to have him back!
  • Wasabi! – Magic Crunch, Tiger roll, Boston roll, and Crazy Cali, some Sashimi and miso soup too.
  • Met up with Brian D who happened to be in town for a friend’s grad party
  • Ran into Steve D. at The Mason.
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Daily Positives – 5/14/2010

  • A mocha kind of morning!
  • Great to catch up with Bill and Mary E while waiting at the airport. Bill and I had a great chat.
  • Norm, Laurel, and the boys made it back safely from India!
  • Fish fry with the Franczek’s!
  • Got to hang out Karen, Joe, Nate, and Ryan along with Norm, Laurel & the GDFB’s
  • Went for a ride on Nate’s Harley. Sweet!
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Daily Positives – 5/13/2010

  • Another decent swim in this AM
  • Chatted with Herb for a bit in the locker room. He broke his toe coming off the bike during an olympic tri in FL 3 wks ago and still finished the 10K run. He’s a tough one. Yikes!
  • A most enjoyable lunch with Jim. I am extremely grateful for supportive friends. Good company makes good food even better.
  • Discovered Ironworks Cafe in the newly refurbished Goodman Community Center. Lunch was amazing and reasonably priced. Best vegetable primavera I have ever eaten for $8.50. Large portion too. Will need to stop for coffee there sometime as well. Love the concept as well, it’s part of a teen employment program through the Goodman Center.
  • Casual drinks at the Sports Pub with a couple of co-workers
  • Wonderful evening of dinner, wine,  and discussion with Kathleen
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Daily Positives – 5/12/2010

  • Kristi brought donuts in this morning at work
  • Decent swim today, felt pretty good. Even got in some interval work.
  • Sitka and I got to go for a walk for the first time this week due to weather. He was pretty spry for an old pup.
  • Got to catch up a bit with neighbor David during walk with Sitka
  • Suddenly sold the Parabody Home Gym on Craig’s List. It had been posted for about 3 months. A guy emailed this afternoon and I called him back this evening. He was here to pick it up about 20 minutes later.
  • Skyped with Norm and the Fam. Probably the last one from India.
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Priorities Update

Based on recent events,  it seemed an appropriate time for an update to my priorities. Similar to developing the list initially, updating priorities was a somewhat challenging, though refreshing, process. There is a certain sense of hopefulness and empowerment in being able to chart your own course and not simply react or acquiesce to the harsh winds of reality. I also thought it may be helpful for me to record previous versions to see how things evolve for me over time, so previous versions are being kept towards the bottom of the page.

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